Faces of Courage and Hope introduces the faces and cancer journeys of sixteen patients with Chronic Myeloid Leukemia (CML).
Men and women of different ages, ethnicities and backgrounds, each share their unique experience in coping with life-altering circumstances and how they refocused their lives.
Creating this book was a wonderful opportunity for us to profile the unique stories of sixteen peoplwho are living with CML.
Their stories are not at all about medicine and biology – they reflect how the challenge of cancer changes your life, and how it forces you to shift your priorities in order to rediscover what is most important to you.
We hope that through centring on these people’s faces and stories, this book will give support, hope, courage and inspiration to those who have to live with cancer.
Bert Spangemacher & Jan Geissler, CML Advocates Network
Chronic Myeloid Leukaemia (CML) is a rare cancer affecting the blood cells. In those cells, a part of Chromosome 9 is exchanged with a part of chromosome 22, leading to an abnormal gene and the overproduction of white blood cells.
As the disease progresses, CML cells replace most normal cells in the bone marrow and prevent the production of healthy, normal blood cells. Only 15 years ago, CML was fatal for the majority of patients.
Through major progress in research, today’s CML patients have almost normal life expectancy with a good quality of life.
Further online resources
Leukämie-Online e.V. / LeukaNET is an independent and vital virtual community for leukaemia patients in German-speaking countries. This web-based network provides support to patients by translating and reporting news about new research publications and various treatment options for leukemia. The web site also provides background information about different forms of the disease, about treatment options and other relevant information necessary.
More than 46,000 Europeans get diagnosed with leukaemia every year, of which more than 6,000 get Chronic Myeloid Leukaemia (CML).
Each CML patient has changed his or her life in one way or another and has learnt to adapt to new circumstances.
Perhaps they have used this incident to go on a very different path, to begin a new life.
This book, Faces of Courage and Hope, was conceived as a way to support and encourage people as they adjust to the new reality of living with CML.